In the Matter of M.B.
(Anonymous).
Mental Hygiene Legal Service,
Appellant,
Staten Island Developmental
Disabilities Services Office,
et al.,
Respondents.
2006 NY Int. 30
Under the Health Care Decisions Act for Mentally
Retarded Persons, a guardian can make health care decisions for a
mentally retarded person, including the decision to terminate
life-sustaining medical treatment, under carefully prescribed
circumstances. The issue in this case -- solely one of statutory
Under New York common law, a competent adult generally has the right to make health care decisions, including the right to refuse life-sustaining treatment ( see Matter of Fosmire v Nicoleau, , 75 NY2d 218 [1990]). If the individual suffers an illness or injury resulting in a loss of decision-making capacity, family and friends may obtain a court order authorizing the cessation of treatment if they can prove -- by clear and convincing evidence of the patient's previously-expressed views -- that the individual would have refused life-sustaining treatment if capable of making that decision ( id. at 225).[1]
Although a guardian of a mentally retarded person was
In the wake of Storar, a distinction arose between the common-law rights of competent adults, who could make their wishes concerning end-of-life care known to family and friends, and mentally retarded persons who had never been competent to make their own health care decisions and for whom life-sustaining treatment could not be refused. When these mentally retarded individuals became irreversibly, terminally ill they were, in effect, ineligible for hospice or other palliative care because their guardians were unable to refuse more intrusive, acute medical treatments aimed at extending life for as long as possible.
As a consequence of this disparity, family members, care-givers and advocacy groups for the mentally retarded sought relief from the Legislature. They shared the stories of mentally retarded patients forced to suffer painful, intrusive life- sustaining medical treatments after it was clear that they would never regain any quality of life because the requests of their guardians (usually parents or siblings) to end life-sustaining measures could not be honored. This was the situation the Legislature sought to remedy when it enacted the Health Care Decisions Act for Mentally Retarded Persons ( see Bill Jacket, L 2002, ch 500) (HCDA).
The HCDA was passed by both Houses and signed by the
Governor in the fall of 2002 but it did not become effective
until 180 days later -- March 16, 2003 (L 2002, ch 500, § 4).
The legislation added a new paragraph to Surrogate's Court
Procedure Act § 1750, the provision that addresses the
guardianship of mentally retarded persons. Before the enactment
of the HCDA, section 1750 stated that, upon the certification of
appropriate medical personnel that a mentally retarded person was
"incapable to manage him or herself and/or his or her affairs by
reason of mental retardation and that such condition is permanent
in nature or likely to continue indefinitely," a guardian "of the
person or of the property or of both" could be appointed (SCPA
1750[1]). A guardianship "of the person" was viewed as
The new provision -- SCPA 1750(2) -- imposes an additional certification requirement, clearly applicable to all future guardianship proceedings. Along with filing a certification from medical professionals that the mentally retarded person is incapable of managing his or her affairs, prospective guardians now must also file a "specific determination by such [medical personnel] as to whether the mentally retarded person has the capacity to make health care decisions, as defined by [Public Health Law § 2980(3)], for himself or herself" (SCPA 1750[2]). In the event the mentally retarded individual has the ability to make health care decisions, the HCDA allows a guardian to be appointed to make other types of decisions. If not, the guardian is granted full medical decision-making power. In the latter event, the HCDA removed any uncertainty concerning the scope of that authority, clarifying that health care decisions include "any decision to consent or refuse to consent to health care" ( see SCPA 1750-b[1], cross-referencing Public Health Law § 2980[6]). Thus, under the HCDA, a guardian can, under certain circumstances, order the cessation of life-sustaining medical treatment for a mentally retarded person who never had capacity to make such a decision.
The HCDA also amended Article 17-A of the Surrogate's
In the event a guardian contemplates the withdrawal or
withholding of life-sustaining treatment, SCPA 1750-b imposes a
decision-making procedure that must be followed before the
decision can be carried out. The threshold requirement is that
the mentally retarded person's physician confirm to a reasonable
degree of medical certainty, after consultation with another
physician or a licensed psychologist, that the person currently
lacks the capacity to make health care decisions (SCPA 1750-
b[4][a]). The attending physician and another concurring
physician must further attest that the mentally retarded person
has one of three types of conditions: a terminal condition,
permanent unconsciousness or "a medical condition other than such
person's mental retardation which requires life-sustaining
treatment, is irreversible and which will continue indefinitely,"
and life-sustaining treatment imposes or would impose an
extraordinary burden on the patient in light of the patient's
medical condition and the expected outcome of the life-sustaining
treatment (SCPA 1750-b[4][b][i], [ii]). In the case of the
withdrawal or withholding of artificially provided nutrition or
hydration, the two physicians must also confirm that "there is no
reasonable hope of maintaining life" or that the artificial
nutrition or hydration itself "poses an extraordinary burden" on
If the requisite medical conclusions are made, the next step is for the guardian to express a decision to end life- sustaining treatment either in writing, signed by a witness, or orally in the presence of the attending physician and another witness, and the decision must be included in the patient's chart. The physician can then issue the appropriate medical orders or object to the guardian's decision but, in either case, the decision to end life-sustaining treatment cannot be implemented for 48 hours (SCPA 1750-b[4][e]). During that time, the physician must notify various parties including, in some circumstances, the mentally retarded person. The Act grants a number of persons and organizations automatic standing to lodge an objection -- the mentally retarded person, a parent or adult sibling, the attending physician, any other health care practitioner providing services to the patient, the director of a residential facility that formerly cared for the patient, the Commissioner of the Office of Mental Retardation Developmental Disabilities (OMRDD), and, if the patient was treated in a residential facility, the Mental Hygiene Legal Services (MHLS)(SCPA 1750-b[5]).
Upon objection, the guardian's decision is suspended
Thus, the HCDA clarifies that guardians can make health care decisions for mentally retarded persons who themselves were never competent to make those decisions, including a decision to end life-sustaining treatment. But it imposes a series of procedural hurdles -- intended to safeguard the interests of the patient and prevent an improvident decision by the guardian -- that must be satisfied prior to the implementation of such a decision.
The issue now presented to us is whether the
Legislature intended to authorize guardians appointed prior to
the effective date of the HCDA to make health care decisions for
mentally retarded persons in accordance with the Act's strict
decision-making structure without having to obtain, through a
separate judicial proceeding, an amended guardianship order that
specifically recognizes their authority as encompassing the power
to end life-sustaining treatment. We conclude that the
M.B., a profoundly retarded 42-year-old man with Down's Syndrome who never possessed the capacity to make health care decisions, lived with his mother until her death in December 2002. In January 2003, M.B.'s brother R.B. was appointed his guardian under Article 17-A of the Surrogate's Court Procedure Act. At that time, the HCDA had been passed but was not yet effective. The guardianship decree therefore named R.B. as "guardian of the person" of M.B. but the court did not specifically address R.B.'s authority to make health care decisions for M.B.
After his mother's death, M.B. lived in a residential
facility specializing in the care of mentally retarded persons.
He later became seriously ill and was transferred to Staten
Island University Hospital where he was diagnosed with pneumonia,
hypertension and hypoxia. His physical condition steadily
declined to the point that he lost consciousness and was placed
on a respirator, with a nasal/gastric tube inserted for feeding
and hydration. M.B.'s physicians concluded that his illness was
terminal, his condition irreversible and that the life-sustaining
treatment currently being provided imposed a substantial burden
on him. Based on the physicians' opinions concerning M.B.'s
medical condition and prognosis, on October 14, 2003 R.B.
requested that the respirator be disconnected, with the
Uncertain of how to proceed, R.B. and his sister appeared pro se in Richmond County Surrogate's Court on October 17, 2003, asking the Surrogate to authorize the hospital to honor R.B.'s request, but the matter was adjourned so that MHLS could initiate formal proceedings. By order to show cause and petition dated October 20, 2003, MHLS sought a declaration that R.B. lacked the authority to issue an order ending life-sustaining treatment because he was appointed guardian two months before the effective date of the HCDA. Having retained private counsel, R.B. opposed the objection. The New York Attorney General's office appeared on behalf of the Staten Island Developmental Disabilities Services Office (SIDDSO), a regional division of OMRDD.[2] Initially taking no position on the controversy, SIDDSO ultimately supported R.B.'s position.
At a proceeding three days later, MHLS asserted that it agreed with R.B.'s conclusion that the cessation of life- sustaining treatment would be in the best interests of M.B. and that it was satisfied that the guardian had complied with all of the procedural and substantive safeguards required under the HCDA. MHLS explained that its objection was not predicated on the facts of this particular case, but on its interpretation that the HCDA did not empower guardians appointed prior to March 16, 2003 to make decisions involving the cessation of life-sustaining treatment for mentally retarded persons. Rather, MHLS argued that these previously-appointed guardians could not exercise such authority unless they individually petitioned Surrogate's Court for an expansion of their guardianship power. As for the current dilemma facing M.B.'s guardian, MHLS contended that the proceeding could be converted into a guardianship expansion proceeding so that R.B. could be granted the authority to render end-of-life decisions for his brother.
R.B.'s attorney countered that it was evident from the
plain language and history of the HCDA that the Legislature had
intended to extend to all guardians, regardless of the date of
appointment, the power to request the termination of life-
sustaining treatment under the new procedures set forth in SCPA
1750-b. R.B. reasoned that, had the Legislature intended to
require previously-appointed guardians to petition for new
powers, it would surely have said so, rather than including
Surrogate's Court rejected MHLS' objection, concluding that R.B. was empowered under the HCDA to order the cessation of life-sustaining treatment for his brother, even though R.B.'s guardianship order was issued before the effective date of the Act. Pursuant to the Surrogate's order, M.B. was removed from the respirator and died within hours.
Acknowledging that M.B.'s death mooted its objection,
MHLS nonetheless pursued an appeal, contending that the case fell
within the exception to the mootness doctrine as it was capable
of repetition, likely to evade review and involved a substantial
legal issue. Considering the appeal under the mootness
exception, the Appellate Division reversed and granted MHLS'
petition. Focusing on the legislative history of the HDCA, a
majority of the court held that the Legislature had not intended
to extend to existing guardians the end-of-life decision-making
powers now recognized in the HCDA. The majority was concerned
that mentally retarded persons with guardians appointed prior to
the effective date of the new legislation lacked an opportunity
to have their capacity to make health care decisions specifically
considered. If the legislation was interpreted to apply to all
guardians, the majority believed that mentally retarded
individuals who might be able to make such decisions for
themselves would not be adequately protected. The Court
therefore concluded that previously-appointed guardians must
After the Appellate Division ruling, both Houses of the
Legislature passed bills that, if enacted, would have altered the
guardianship enlargement procedure envisioned by the Appellate
Division majority (2005 NY Senate Bill S 5803; 2005 NY Assembly
Bill A 8906). Both the Senate and Assembly sponsors of the new
legislation stated that the legislative intent of the HCDA had
been to retroactively confer full health care decision-making
authority on the tens of thousands of existing guardians without
a requirement that they seek new guardianship orders from the
courts (Mem in Support of Senator Hannon, Bill S 5803; Mem in
Support of Assembly Member P. Rivera, Bill A 8906). Although he
agreed with the sponsors' view of the scope of the HCDA, the
Governor vetoed the legislation, concluding that the proposed
amendment was premature in light of the pending appeal to this
Court (Gov. Pataki Veto Message No. 121 of 2005).
Like the Appellate Division, we address this appeal under the exception to the mootness doctrine because the issue presented is substantial, likely to recur and involves a situation capable of evading review ( Matter of Hearst Corp. v Clyne, , 50 NY2d 707 [1980]). Both SIDDSO and MHLS emphasize that this case presents an issue of statutory interpretation. MHLS did not contend below and does not assert here that there is any constitutional impediment to interpreting the legislation in the manner urged by SIDDSO. As such, our task -- as it is in every case involving statutory interpretation -- is to ascertain the legislative intent and construe the pertinent statutes to effectuate that intent.
We begin with the statutory text, which is the clearest indicator of legislative purpose ( Majewski v Broadalbin-Perth Central School, , 91 NY2d 577, 583 [1998]). If the "language . . . is clear and unambiguous, courts must give effect to its plain meaning" ( State of New York v Patricia II, 6 NY3d 160, ___ [2006], quoting Matter of Tall Trees Constr. Corp. v Zoning Bd. of Appeals of the Town of Huntington, , 97 NY2d 86, 91 2001]). When the terms of related statutes are involved, as is the case here, they must be analyzed in context and in a manner that "harmonize[s] the related provisions . . . [and] renders them compatible" ( Tall Trees, 97 NY2d at 91).
In this case, SIDDSO relies on two provisions of the
Second, SIDDSO cites the language in the first subsection of the new SCPA 1750-b, entitled "Scope of Authority," which provides:
" Unless specifically prohibited by the court after consideration of the determination, if any, regarding a mentally retarded person's capacity to make health care decisions, which is required by section [1750] of this article, the guardian of such person appointed pursuant to section [1750] shall have the authority to make any and all health care decisions, as defined by [Public Health Law § 2980(6)], on behalf of the mentally retarded person that such person could make if such person had capacity. Such decisions may include decisions to withhold or withdraw life-sustaining treatment, as defined in [Mental Hygiene Law § 81.29(e)]. The provisions of this article are not intended to permit or promote suicide, assisted suicide or euthanasia; accordingly, nothing
in this section shall be construed to permit a guardian to consent to any act or omission to which the mentally retarded persons could not consent if such person had capacity" (SCPA 1750-b[1] [emphasis added]).
We agree with SIDDSO that the phrasing of the first sentence of subsection 1750-b(1) is telling -- not only in what it says but also in what it does not say. The Legislature did not declare that a guardian has authority to make medical decisions only if the court has expressly authorized the guardian to do so -- language one would expect to find if the Legislature had intended to require existing guardians to petition for enlargement of their power as MHLS maintains. Instead, the Legislature has provided that all guardians " have the authority to make any and all health care decisions," "unless specifically prohibited by the court" (SCPA 1750-b[1] [emphasis added]).
The phrase "if any" in the beginning of section 1750-
b(1) further illuminates the legislative intent. Since guardians
appointed after the effective date of the HCDA must include a
certification concerning the mentally retarded person's health
care decision-making capacity, this clause -- which clarifies
that health care decisions can be made even in the absence of
such certification -- can only be understood as referring to the
authority of existing guardians who would not have obtained this
certification. This interpretation of 1750-b(1) is consistent
with the clear statement in the newly-added section 1750(2)
exempting guardians appointed prior to the effective date of the
The legislative history of the HCDA supports this construction. The Assembly sponsor stated that the purpose of the bill was to "allow the legally appointed guardians of mentally retarded individuals to have the authority to make medical decisions on behalf of such person, including decisions dealing with the withdrawal or withholding of life-sustaining treatment" (Luster Mem in Support, 2002 NY Assembly Bill A 8466D [NYS Legis. Retrieval Serv.]). In his memorandum in support, the Senate sponsor repeatedly notes that the legislation was not viewed as a significant change in the law but was a clarification of the power the Legislature had always intended guardians of mentally retarded persons to possess under SCPA article 17-A. The sponsor stated:
"This bill clarifies that guardians of persons with mental retardation have the authority to make health care decisions, including decisions regarding life-sustaining treatment under certain circumstances" (Hannon Mem in Support, NY Senate Bill S
4622B, 2002 NYS Legis. Annual at 279).
Echoing the language in the legislation, the Senate sponsor asserted that guardians "have the authority" -- not that guardians must now seek to obtain health care decision-making authority. He described the purpose of the legislation as follows:
"In general, the bill reflects four overarching motives: (1) to clarify that decisions regarding life-sustaining treatment are part of the natural continuum of all health care decisions, (2) to allow decisions to end life-sustaining treatment only where the need is clearest . . ., (3) to utilize existing legal standards wherever possible, and (4) to maintain judicial oversight of close decisions, with a statutory structure incorporating a workable standard for the court" ( id. [emphasis added]).
Thus, the role of the courts is described as "oversight of close decisions" relating to medical treatment, a clear reference to the objection process and resulting judicial proceeding referenced in subsections 1750-b(5) and (6).
The Commission on Quality of Care for the Mentally
Disabled likewise observed that the bill would "clarify that
guardians can make medical decisions on behalf of persons with
mental retardation based upon the best interests and reasonably
known wishes of the person[s] . . . including, when appropriate,
withdrawal of life-sustaining treatment" (Mem of Commn. on
Quality of Care for the Mentally Disabled, Bill Jacket, L 2002,
ch 500, at 10). Nowhere in the extensive Bill Jacket is there
any suggestion that the Legislature intended previously-appointed
To be sure, the HCDA imposes a new obligation on guardians appointed after its effective date that was not -- and is not -- applicable to previously-appointed guardians. In addition to the long-standing requirement that medical personnel certify that the mentally retarded person is "incapable to manage him or herself and/or his or her affairs" (SCPA 1750[1]) -- a certification all previously-appointed guardians would have filed -- the HCDA now requires that prospective guardians also file a certification by medical personnel specifically addressing the mentally retarded person's capacity to make health care decisions (SCPA 1750[2]). Previously-appointed guardians are expressly exempted from filing this health care capacity certification (SCPA 1750[2]).
It does not follow -- as MHLS argues -- that the Act
must be construed to require existing guardians to obtain new
appointment orders because any other interpretation would be
inconsistent with the Legislature's overriding concern that the
rights of mentally retarded persons, including those capable of
making health care decisions, be protected. This argument turns
Critically, the HCDA does not exempt previously-
appointed guardians from any of the strict SCPA 1750-b procedures
governing specific health care decision-making, including end-of-
life decision-making. If a guardian seeks to withhold or
withdraw life-sustaining treatment, the threshold step in the
statutory decision-making structure is the requirement that the
patient's attending physician, in consultation with at least one
other medical professional, confirm that the patient lacks the
capacity to make health care decisions (SCPA 1750-b[4][a]).
Because it requires two health care professionals to assess the
mentally retarded person's capacity to make health care
decisions, this requirement mimics the health care capacity
certification undertaken in new guardianship proceedings. Thus,
newly-appointed guardians will have to address the health care
MHLS reads the first clause in the new section 1750-
b(1) -- "unless specifically prohibited by the court" -- as
preserving the court's supervisory role over medical decision-
making by guardians. This is true. Going forward, under the
health care capacity certification process applicable to
guardians appointed after the effective date of the HCDA, courts
must consider the mentally retarded person's capacity to make
health care decisions and, in appropriate cases, may limit the
guardian's authority in that realm. Moreover, courts are clearly
empowered to resolve disputes concerning particular health care
decisions made by guardians. But, by choosing to phrase the
power granted guardians expansively -- stating that they have
health care decision-making authority unless the court
MHLS attempts to limit the import of the phrase "if any" in section 1750-b(1), arguing that it means only that existing guardians -- who it claims must petition the court to expand their powers -- are relieved from filing the specific health care capacity certification that new guardians must file under SCPA 1750(2). But this interpretation undercuts the primary premise of MHLS' argument -- that the Legislature could not have intended to authorize all guardians, even those appointed prior to the HCDA, to make health care decisions in the absence of certifications specifically addressing health care decision-making capacity. If, as MHLS suggests, the Legislature meant for existing guardians to apply for expansion of their power to specifically encompass health care decision-making, why did it expressly exempt them from the central requirement of that procedure by dispensing with the certification process through which the capacity of the mentally retarded person is determined?
In essence, MHLS suggests that SIDDSO's interpretation
of the HCDA cannot be effectuated because this would result in
distinctions between the obligations of existing and future
guardians. However, MHLS relies on a construction that also
treats previously-appointed guardians differently from new
guardians since MHLS recognizes that SCPA 1750(2) relieves the
former from the health care decision-making capacity
The Legislature made a policy decision that newly- appointed guardians need to meet a specific health care capacity certification requirement. Given the thousands of previously- appointed guardians, state lawmakers chose not to impose the new capacity certification requirement on existing guardians or otherwise require them to commence court proceedings seeking expansion of guardianship authority. In light of the significant procedural protections afforded in SCPA 1750-b, the Legislature concluded that the rights of mentally retarded persons would be safeguarded absent such a requirement.
MHLS is certainly correct that the HCDA provides for
judicial oversight of end-of-life decisions by guardians. But,
in the case of previously-appointed guardians, such judicial
oversight occurs when a guardian reaches an end-of-life decision,
the necessary parties are notified, and someone objects to the
decision. The Legislature determined that it would serve no
significant purpose to require each previously-appointed guardian
to commence proceedings for the expansion of health care
decision-making authority (which would have to occur even if no
issue concerning end-of-life decision-making is pending or even
likely to arise) given the procedural steps all guardians must
MHLS responds that this inquiry is not equivalent to
the initial guardianship certification process contemplated under
the new SCPA 1750(2) because it occurs after the mentally
retarded person is in medical crisis and therefore fails to
adequately account for the possibility that the patient might
once have had the capacity to make health care decisions. But
whether judicial intervention is sought in the context of a
guardianship expansion proceeding or a SCPA 1750-b objection, the
court must render a determination based on the present capacity
of the mentally retarded person -- not abilities the patient may
have once possessed. MHLS' contrary view of the statute would,
in effect, prevent any existing guardian from obtaining the power
to withdraw life-sustaining treatment if the patient was already
in a terminal medical crisis when the HCDA became effective,
excluding a class of patients -- ironically, those in immediate
need of the rights afforded by the legislation -- from the
protections of the HCDA, a result not intended by the
Legislature.[4]
Moreover, in circumstances where the mentally retarded person formerly had some capacity to make medical decisions, the guardian is nonetheless required to base medical decision-making "on the best interests of the mentally retarded person and, when reasonably known or ascertainable with reasonable diligence, on the mentally retarded person's wishes, including moral and religious beliefs" (SCPA 1750-b[2][a]). Thus, the wishes of a mentally retarded individual who once had capacity to make health care decisions are not disregarded under the new statutory scheme.
In sum, while MHLS and the Appellate Division are
understandably concerned that the interests of mentally retarded
individuals be scrupulously protected, the Legislature designed
the statutory scheme to meet that important objective. First,
SCPA 1755 authorizes any person (including a mentally retarded
person) at any time to seek judicial review of the scope of a
guardianship order and "request[] modification of such order in
order to protect the mentally retarded person's . . . personal
interests." In other words, even prior to the enactment of the
HCDA, the authority granted a guardian with respect to a
particular mentally retarded person was subject to judicial
review in the event of a concern regarding the guardian's
exercise of any aspect of that authority, including health care
decision-making. The HCDA did not alter this procedure. As
Second, as this case demonstrates, the notification and objection process in SCPA 1750-b provides substantial protection to mentally retarded patients. Guardians must base health care decisions on the advice of qualified medical professionals and must follow a multi-step procedure before any end-of-life decision will be honored by a health care facility. In any case where a disagreement arises between the guardian and one of a host of other interested parties (family members, the patient's medical caregivers, OMRDD, a residential director of a facility or MHLS), the statute mandates that the conflict be resolved by the courts. MHLS does not dispute the efficacy of this procedure, nor does it assail the Legislature's choice not to require judicial approval of health care decisions in circumstances where all parties agree that the guardian is acting in the mentally retarded individual's best interests. Although the Legislature could have charted a different course, the decision not to require previously-appointed guardians to seek new appointment orders was for the Legislature to make and, absent constitutional challenge, it must be upheld by this Court.
Accordingly, the order of the Appellate Division should
be reversed, without costs, and the order of Surrogate's Court
1 In addition to the rights recognized under the common law, a competent adult can, of course, relieve family and friends of the burden of seeking such a court order by executing a health care proxy pursuant to Public Health Law § 2981 naming a surrogate health care decision-maker who can make binding decisions in the event the appointing adult loses the capacity to make such decisions. A person can also express his or her wishes regarding life-sustaining treatment in what is known as a "living will."
2 SIDDSO is a division of the State Office of Mental Retardation and Developmental Disabilities. OMRDD operates fourteen regional DDSOs in New York State, which coordinate and deliver services to mentally retarded and developmentally disabled individuals (and their families) whether they reside in state-operated facilities, group homes or family settings (Information for Individuals and Families <www.omr.state.ny.us/hp_individuals.jsp> [last updated February 14, 2006]).
3 In granting leave, the Appellate Division certified the question: "Was the opinion and order of this court dated June 13, 2005, properly made?"
4 In this case, MHLS took the position that R.B. could apply for enlarged guardianship powers under SCPA 1750(2), thereby obtaining authority to make medical decisions for M.B. and to withdraw life-sustaining treatment, even though M.B. was already in medical crisis, urging the court to pursue this procedural route rather than the objection procedure set forth in SCPA 1750- b(5) and (6).