Current through Register Vol.. 38, No. 17, April 11, 2022
Virginia Bleeding Disorders Program improves the availability and accessibility
of comprehensive care for clients with inherited bleeding disorders and their
Scope of services. In
collaboration with a network of comprehensive bleeding disorders clinics in the
Commonwealth, services are provided by a multidisciplinary team that focuses on
the physical, emotional, social, educational, financial and workplace impact of
inherited bleeding disorders. The comprehensive care team collaborates closely
with the client's primary care provider within their community.
The Virginia Bleeding Disorders Program provides the
following enabling services:
Assistance in accessing comprehensive specialty health care services for
clients with inherited bleeding disorders and a medical home.
2. Care coordination.
3. Insurance case management that may include
a comprehensive resource assessment, consultation, and referral of eligible
individuals to third party payers; education and assistance to individuals
regarding health care choices relevant to insurance options; procurement of
grants for the funding of third party medical coverage; and assistance to
eligible individuals in the health insurance application and enrollment process
and procurement of the least costly and beneficial medical coverage.
4. Information and referral.
5. Collaboration with the Virginia Department
of Education and its Education in Hospitals Program to provide consultation for
families, educators, and school administrators.
6. Transition from child to adult oriented
health care system.
Training and technical assistance for community providers.
9. Promotion of quality assurance and policy
development through the Hemophilia Advisory Board.
Criteria to receive services of Virginia
Bleeding Disorders Program. Individuals are eligible to receive services from
the Virginia Bleeding Disorder Program if they are:
1. Residents of the Commonwealth.
2. Any age.
3. Diagnosed as having an inherited bleeding
Clients of a
comprehensive bleeding disorder clinic.
No financial eligibility criteria are required for clients to
receive the enabling services. However, clients who meet the above criteria
must also meet the financial requirements for eligibility for access to a pool
of funds for payment of their direct health care services.
Goals. The Title V national
performance measures, as required by the federal Government Performance and
Results Act (GPRA- Pub. L.
), are used to establish the program goals.
The following goals shall change as needed to be consistent with the Title V
national performance measures:
with inherited bleeding disorders will partner in decision making at all levels
and will be satisfied with the services they receive.
2. Clients with inherited bleeding disorders
will receive coordinated, ongoing, comprehensive specialized care in
partnership with their community-based primary care provider.
3. Clients with inherited bleeding disorders
will have adequate private or public insurance or both to pay for the services
4. All youth with
inherited bleeding disorders will participate in preparing for transition to
adult life, including adult health care, work and independence.