12 Va. Admin. Code § 5-71-130 - Responsibilities of the Pediatric Comprehensive Sickle Cell Clinic Network
A.
Upon notification by the Virginia Newborn Screening Program of an infant
diagnosed with sickle cell disease, the Virginia Sickle Cell Awareness Program
shall track infants identified with sickle cell disease and related
hemoglobinopathies to ensure that they receive care and refer the infants to
the Pediatric Comprehensive Sickle Cell Clinic Network.
B. The Pediatric Comprehensive Sickle Cell
Clinic Network shall provide the following services:
1. Consultation on screened-abnormal results
to primary care providers and parents;
2. Family counseling and support;
3. Regularly scheduled clinics, which meet
the needs of the population served; and
4. Referral to appropriate inpatient care
facilities.
C. The
Pediatric Comprehensive Sickle Cell Clinic Network shall provide data as needed
by the department's newborn screening program.
Notes
Statutory Authority: §§ 32.1-12 and 32.1-67 of the Code of Virginia.
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