Iowa Admin. Code r. 641-4.12 - Duties of the advisory committee

CIDAC shall perform the following duties:

(1) Make recommendations about the design and implementation of the center's programs, including but not limited to:

a. The Iowa newborn screening program, including management of the Iowa newborn screening panel.

(1) The advisory committee shall assist the center for congenital and inherited disorders and the department in designating the conditions to be included in the newborn screening and in regularly evaluating the effectiveness and appropriateness of the newborn screening.

(2) Beginning July 1, 2022, the advisory committee shall ensure that all conditions included in the federal recommended uniform screening panel as of January 1, 2022, are included in the newborn screening.

(3) Within 12 months of the addition of a new condition to the federal recommended uniform screening panel, the advisory committee shall consider and make a recommendation to the department regarding inclusion of the new condition in the newborn screening panel, including the current newborn screening capacity to screen for the new condition and the resources necessary to screen for the new condition going forward.

(4) If the advisory committee recommends inclusion of a new condition, the department shall include the new condition in the newborn screening panel within 18 months of receipt of the recommendation;

b. The regional genetics consultation service;

c. The maternal prenatal screening program;

d. The neuromuscular and related genetic disorders program; and

e. The Iowa registry for congenital and inherited disorders.

(2) Support the development of special projects and conferences regarding genetic and genomic health care services and issues.

(3) Advocate for quality genetic and genomic health care services for all residents in the state of Iowa.

Notes

Iowa Admin. Code r. 641-4.12

ARC 0664C, IAB 4/3/2013, effective 5/8/2013 Amended by IAB October 5, 2022/Volume XLV, Number 7, effective 11/9/2022