25 Tex. Admin. Code § 37.58 - Follow-Up, Reporting, and Record Keeping on Abnormal Screening Results and Confirmed Cases
(a) The department
shall make notification of abnormal screening results as specified in Texas
Health and Safety Code, §
33.014(a).
The department maintains an active system of follow-up for those cases. The
department will provide recommendations for clinical confirmation following
abnormal screening results.
(b) The
department may request local health authorities, and/or the designated staff in
the department's health service regions to provide follow-up and other
appropriate assistance for individuals at risk from the disorders referenced in
§
37.53 of this title (relating to
Disorders for Which Blood Specimen Screening is Performed).
(c) The person submitting the newborn
screening specimen may assist the department with follow-up of individuals at
risk for the disorders referenced in §
37.53 of this title.
(d) The department will identify pediatric
specialists in the state who are available to provide consultation to
physicians and other health care practitioners regarding the diagnosis and
management of newborns with abnormal screening results. If a screening test
indicates that a newborn child is at high risk, department program staff will
provide the physician, or other health care practitioner if the infant does not
have a physician, with the names of appropriate consultants in the infant's
geographic area. The program may provide information about abnormal screening
results to the pediatric specialists who cooperate with the department as part
of the department's activities under this subchapter.
(e) Each physician, local health authority,
or other individual shall report to the department all confirmed cases of the
disorders referenced in §
37.53 of this title within 30 days
of obtaining such information.
(f)
The department will collect and compile information it receives under this
subchapter and from other sources to derive incidence/prevalence rates for the
disorders referenced in §
37.53 of this title. The data may
enable the department to identify high-risk population groups, with the
ultimate goal of preventing severe sequelae of the disorders.
(g) The department may follow up with a
confirmed case through periodic data collection from the physician and/or other
health care practitioner and/or parent, managing conservator, or legal
guardian.
(h) The department shall
maintain a registry of children born in Texas who have been diagnosed as having
one of the disorders referenced in §
37.53 of this title, as required
by Texas Health and Safety Code, §
33.015(c).
Notes
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