Utah Admin. Code R384-300-1 - Purpose Statement
(1) The Parkinson's
Disease Reporting Rule is adopted under authority of sections
26-1-30
and
26-5-3.
(2) Parkinson's Disease (PD) is a
common neurodegenerative disease that affects one in 100 persons over the age
of 65 years. PD is a progressive, ultimately fatal condition, which may be more
common in Utah than in other states. The growth rate of the over-65 segment of
the population in Utah is more than 30%. The purpose of the Utah Parkinson's
Disease Registry (Registry) is to develop a central database of accurate
historical and current information for research and public health purposes. The
Parkinson's Disease Reporting Rule will provide for screening and collection of
patient data that may be useful in detecting the incidence and possible risk
factors concerning PD and related movement disorders. The information gained
will help increase understanding of this disease and aid in planning for early
diagnosis, developing health education for patients and providers, and
providing correct medical or surgical therapy health requirements.
(3) Parkinson's Disease records are managed
by the Parkinson's Disease Registry at the University of Utah on behalf of the
Utah Department of Health. This Parkinson's Disease Reporting Rule is adopted
to specify the reporting requirements for cases of Parkinson's Disease to the
Registry. The Utah Department of Health retains ownership and all rights to the
records in the Registry.
Notes
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