Utah Admin. Code R398-2-6 - Reporting to Utah Department of Health and Human Services
(1)
(a)
Each institution or birth attendant shall submit information to the Department
about the newborn hearing screening procedures used, the results of the
screening, and other information necessary to ensure timely referral when
necessary. The institution or birth attendant shall provide this information to
the Department at least weekly.
(b)
The institution or birth attendant shall provide, for each live birth, the
identifying information for the infant, last name, date of birth, newborn
screening kit number, birth mother's first and last name and other information
as determined by the Department, and the hearing screening status, including
passed, failed, inconclusive, refused, missed, transferred, deceased.
(c) The institution or birth attendant shall
provide, for infants who did not pass the newborn hearing screening or who were
not screened, this additional information:
(i)
primary contact's first and last name;
(ii) address;
(iii) telephone number;
(iv) primary care provider's first and last
name; and
(v) other information as
determined by the Department.
(d) The institution or birth attendant shall
provide any information the institution or provider has about the results of
follow-up screening, diagnostic procedures, and cytomegalovirus lab results,
including whether the infant has been lost to follow-up.
(2) Each institution shall submit, to the
Department, a summary of the procedures used by the institution or screening
program to do newborn hearing screening, including the name of the program
director, overseeing audiologist, equipment, screening protocols, pass-fail
criteria, and parent education materials and other information as determined by
the Department. The institution shall provide this information to the
Department bi-annually and within 30 days of any changes to the existing
procedures.
(3) Persons who conduct
any procedure necessary to complete an infant's hearing screening or
audiological diagnostic assessment, shall report the results of these
procedures to the institution where the infant was born and to the Department
within seven days.
(4) The
Department shall have access to infants' medical, diagnostic, amplification,
implantation, and early intervention records to obtain information necessary to
ensure the provision of timely and appropriate follow-up diagnostic and
intervention services, including CMV testing results and follow-up, congenital
CMV sequelae, treatments, and anything else deemed necessary to determine
long-term outcomes.
(5) Providers
who diagnose an infant or child as deaf or hard of hearing shall refer the
families to early intervention and family to family support services. To
facilitate timely intervention services, the provider shall:
(a) send each necessary diagnostic result and
recommendation to the early intervention program; and
(b) advise families on the benefits of early
intervention services for any permanent atypical hearing levels or chronic
middle ear effusion.
Notes
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